Genes, Boobies and Other Accessories

I WORE A TSHIRT!

I finally came out of the fog of that horrific expansion two weeks ago. It took me about 4 days and then I was mobile and pretty much pain-free. The next week I got to do some things I haven’t done in months. Are you ready for this?! I WORE A TSHIRT! I know that sounds silly, but it was a big deal to me. I haven’t had that kind of mobility yet. I ended up wearing tshirts all weekend in fact…just because I could.

I know there’s a big lesson for me to learn regarding that horrible fill but I can only think of these three lessons right now. (I’m still trying to wrap my mind around how I survived that week.) First, I found that my threshold for pain is much greater than I ever knew…but I’m still not sure I would be into the things I learned about in Fifty Shades of Grey. Hell, who am I kidding. I would give it try now that I know my limit. – just kidding, mom ;)- I also learned that expanders tug at my arm fat and I don’t like it. Mostly I learned that expander boobs are still weird no matter who you are or how you try to cover them up.

I know many of you that are considering or preparing for surgery are nervous about the pain of this whole process. It’s scary. I get that. I was scared too. The scary part is that you don’t know how you will tolerate expansion until you experience it. Many people say that they just feel “tight” all through their chest but that it’s tolerable. For those of you gearing up for reconstruction with expanders, I pray this is the case for you.

I have a theory about why my pain has been so excruciating now that I’m past that huge fill. This week I got a 50cc fill. The pain was still present, but not as bad as with 100cc. Through this milder pain, I was able to identify where the pain was coming from. I realized that my arms hurt like they do if you have tennis elbow or carpal tunnel. At some point I went to scratch my shoulder and it turns out, it wasn’t my shoulder that was itchy but an area on my chest. Guess what that means?! Nerve pain. So my theory (based on my years of medical experience on the internet) is that because of the nerve confusion and disruption that my body experienced during the surgery (a la cutting through all the nerves), the pain I’m feeling isn’t totally muscular…it’s also nerve pain. Guess what THAT means?!

Not much I can do about it.

In graduate school I studied uncertainty reduction theory. It basically states that we find ways to reduce uncertainty in order to make sense of the world around us. If we can label something then it’s not as scary…or uncertain. Figuring out the source and/or cause of my pain is a way that I can reduce the uncertainty before each fill. Maybe now I can minimize or eliminate the paralyzing fear I experience prior to the fill. I feel like I reached another milestone in my mental battle with this process. There’s not a whole lot you can do about nerve pain. Now that I know that’s what it is…I’m more convinced to continue the smaller fills. At the very least, I feel like I’ve got a little more control over the beast that is – pain after a fill.

I have also finally been able to identify the length of time it takes for me to get over the impact of a fill. For severe pain it takes me 4 days. For tolerable and milder pain it takes me 2 days. All that said…I’m back behind the steering wheel and can manage my life around these “episodes.” I mean it’s mind over matter at this point, people. I just gotta power-thru.

My doctor told me Monday that I’m at the half-way point! I’m at 350cc and I just need to get to 700. Can I get a hell yeah?! This means I’m on track for my next surgery to be scheduled sometime around the middle of September. I have a goal in sight now. I’m digging in my heels and am determined to make it through the rest of these fills. I’m bound and determined to not get nervous about the next surgery because if I survive expansion the next bit should be more manageable (notice I didn’t say easier). And because in the words of my best friend, Jess, “Mandy should not be afraid of her surgeries…her surgeries should be afraid of her.”

I’ve been taking pictures of myself wearing the same tank top after each fill. In the end, I’ll share an entire series of pictures from start to finish so that you ladies that are gearing up for surgery can see the progress that’s made during expansion. I’ve had a few very heart-felt messages from some of you (both on the blog and privately) that are nervous about expansion because of the pain that you’ve read about in my posts. I don’t ever want to scare you, but I do want to make sure that I share my experience so that you go into this with as much information as you can. More importantly, I want you to know that even through the pain, I’m still progressing and happy with the decision I made. I think it’s at least somewhat helpful for you to see the difference that the 100cc fill made for me. Not only so you can visualize the size difference, but also so that you can see that from first glance, you probably wouldn’t know that I was going through reconstruction.

Here are two photos. (When I post final pictures, they’ll be edited better and not just straight from my phone.) I just really wanted to post something so that you’d have a good idea of what the difference in the two fills looks like…and you can see I’m slowly starting to get some sort of shape to them. I hope that they are taken for what they are – an encouragement to stay focused and know that we do, in fact, survive expansion.

Because we should not fear expansion…expansion should fear us.

Before 100cc fill (yes, that’s Happy being lazy on the couch)

After 100cc fill…ouch

Comments on: "I WORE A TSHIRT!" (6)

  1. Mandy im so sorry you are going through this. I wanted to let you know that since Nov. My mom has been batteling breast cancer. She finished all of her chemo and has had the same surgery. My family and I moved in with her to help her out a few months ago. I feel for you because I know what she has gone through. I think you are a few weeks or a month ahead if her but I want to thank you for your blog because it helps me kind of know what to expect as far as what she may be feeling or how bad she may be feeling. I am happy to tell you that she is now cancer free and we are all full of hope. I do hope that every thing

    • Sorry about that. Everything goes smooth for you with a minimal amount of pain. I wish you the best of luck and I hope this new out look on life is the best it can be.

      • Thank you Mitch. I’m so happy to hear that your mom is doing better! Please feel free to share my blog with her. Everyone’s experience is different, but maybe she’ll find something helpful through reading about my experience. It’s so nice to hear that you’ve gotten helpful insight from it as well. I’m happy to answer questions if she has any. I’m sure she’s going to do well with it. And the peace of knowing that she will remain cancer free after the surgery will be sooooo worth any discomfort she might feel during reconstruction. Much love to you guys! She’s lucky to have your help and support!

  2. Happy to have found your blog. I’ve wondered about the comfort level of the expansion process myself so was nice to read about someone that is going through it. I will be having a mastectomy on July 20th….and am not looking forward to the whole reconstruction process or not being able to wear normal clothes like you mentioned as well. Heck, I’m worried about the two not matching since I’m only having one done…LOL. God help us! Sending you strength and positive thoughts!!

    • I’m glad you found me too! The weird thing is that some people have pain like I have and others don’t. I will pray that you are one of the ones that has little pain. 🙂 Good luck with surgery! Feel free to ask me anything if you have questions before or during reconstruction. Sending you good thoughts as well!

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